The ability to learn is not fixed. Patient / Public involvement and engagement are about finding frameworks of useful dialogue between people who speak, think, learn, and live differently.
Amber’s experience (seven years) in patient / public involvement and engagement (PPIE) has been focused in neurosciences (clinical, pre-clinical, cognitive and computational). Her PPIE training and approach has been influenced by her research degree backgrounds (biomedical neuroscience), arts background, people living with fatal and nonfatal conditions, and by family members significantly affected by various health problems. Amber has been able to utilise her cross-disciplinary perspective in PPIE to develop, optimise, and quantify programmes tailored for strategic impact.
PPIE Training and Discussion
Amber facilitates, trains and holds panel discussions on patient/public involvement and engagement (PPIE). She has trained clinical staff, undergraduate and MSc students, patients, junior researchers and Principal Investigators, artists and public in PPIE and co-design of research. She also facilitates and develops PPIE programmes.
Training with Amber
“In 2014, I went to a highly inspiring and captivating public engagement event organised by Amber. I attended my first patient/public engagement training with Amber the following year. I have now been able to apply my new skills and knowledge into running two creative public engagement events and have helped on several others including a sell-out educational art-science exhibition with an appearance from Russell Brand. Amber is not only an adept and skilled training manager but also an exceptional role model whose positive attitude has inspired me! She is highly motivated and hard working and I have no doubt she will continue to motivate others to create innovative, inspirational public engagement events in the future.” –Rohisha Luchun
Impact Data Capture
Below is a brief overview of some measures, but not all, of the data capture on patient and public engagement that Amber has created, directed and developed.
PPIE Directed by Amber
45Individual PPIE projects Amber has directed from inception to implementation in the last 5 years
A Snapshot of PPIE event feedback
"I enjoyed the interplay between scientists, performers and patients"− Carol Hovelidge, audience
"Fantastic event that gives insight to its audience and shines light into the lesser explored areas of society. Engaging presentations, informative and hopeful. Thank you!!"− patient audience
"I have no knowledge about science and I got this event! It was amazing! Thank you!"− public audience
“A highly thought-provoking evening, filled with performances and academic talks about neurological disorders, that successfully combined complex neurological ideas with innovative technologies and live performances.” – The Lancet Neurology
Self-report captured of the representative average of over 1000 attendees from different events in the last year, where Amber was the principal organiser.
Total funding awards that Amber has contributed to the PPIE strategies in the last 5 years (£) 23658500 Rounded sum of total GBP awarded, where Amber has written or contributed to the long-term PPI or PPE strategies on the grant
Creativity and Innovation
Creativity and innovation bridge gaps that people believe to be impossible. I unite art and science to inspire, impact lives and drive social change. Amber Michelle Hill